Read a short note from Dr. Shoba Subramanian on Rare Disease Day:
"On February 28th, we recognise Rare Disease Day. The purpose is to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families.
Together we need to learn more about the different types of rare diseases and to do our part to encourage researchers and decision makers to address the needs of all those living with a rare disease. Too often these diseases, which are no less serious in the way they impact people’s lives, can be side-lined in conversations around health and wellbeing. It can be challenging for people to get the information, treatment and support they need.
Head to rarediseaseday.org to find out how you can get involved, from sharing a photo on social media to joining a webinar with others across the globe. More needs to be done in this fight and we need to encourage as many people as possible to keep investigating rare diseases, so that we can help more people with the answers they need and help make the healthcare system work better for everyone." - Dr. Shoba Subramanian, Medical Director, Europe, UnitedHealthcare Global